My Niece passed away

[93ramvert]

Wed. Dec 21st at 3:05am I got the call. She had just turned 10 years old 14 days prior. She had been fighting Muscular Dystrophy for 10 long years. It was her second night on a bipap machine which dislodged a mucus plug from her one good lung which blocked her throat. The nurse who was to be watching over her, basically froze and basically did nothing while my sister and brother in-law called 911, and tried to suction her. This happened once before about two months ago, where she coded, but was in the doctors office at Boston Childrens Hospital and all worked out. She was scheduled to go for surgery on Jan. 12, 2005 to have a halo attached to her head, neck and spine for three months which was to straighten out her spine and allow for her collapsed lung to be repaired. She had also been scheduled to have spinal surgery right after the Halo was taken off. She had battled threw so many surgeries in the past, I think she was just ready to go. For those of you who have seen some of my postings in the past, I would like to thank you all for your kind words and prayers. She is praying for us now. It has been a very difficult time for the family as she was such a special person. In her short ten year period she had touched thousands of people. It was one of the biggest funerals that I have ever seen, and one of the biggest the funeral home has done. It was none stop for 4 hours, we saw well over 600 people. I'm so glad I took the last year to work with her and get so much closer to her. This is the worst thing that I have ever experienced in my life. Hug your children for me tonight, and tell them La you (Tori's way of saying Love You). I'm going to post a couple pics up on my gotstang homepage.

[Fastest302]

Im sorry to hear about that. give the family my sympony .

[NCOGNDO]

Both my daughters are healthy and i thank god for that. I dont know if I could cope otherwise. My youngest neice had acid reflux so bad that it ate a hole in her stomach lining and when she was young she had to go through several surgeries before she was even a toddler. My condolances to your family, god bless.

[HerNastyNotch]

I'm so sorry for your loss... but I am happy for her freedom. She can do whatever she wants to now. She'll always be a wisp of wind caressing your cheek.

[yosemiddysam]

So sorry for your families terrible loss. You have my deepest sympathy.

[02BlueStang]

Most people would give their sympathy and condolences in a situation like this...

but having lost my father to Lou Gehrig's disease I know first hand what it is like to see someone you love suffer for year on end, fight day after day only to have more challenges to beat then you had when you woke up that morning.....

Hearing people say that they are sorry for your loss does not help the pain that you or her family are enduring....in response to your loss I offer you this....Celebrate her life, her memory, celebrate HER....for in her loss she is happier, she is away from the struggle of her body and is happier and able to watch over every single person that she loved while she was with you on earth....

Remember her not for when she was sick, but for when she was healthy....remember the things she laughed at, the times she smiled and silently think of "la you" whenever you hear someone say I love you....for in that their is happiness in yourself, in your life, and in her memory.....her body may be gone, but she lives on forever in your heart and in your memories, and no disease nor struggle in life can ever take those away....

I found much more strength in knowing that then hearing how sorry people were...I hope it helps for you and her family as well....

Happy Holidays and may the happy times with her be with you and her family forever....

[ChromaLusion]

I am very very so so so sorry to hear that news. At least you got to be with her throught those years. Try to remember the good times. Forget the not so good times. She won't be suffering now. ::hug::

[slvrbullit331]

Sorry for you and yours family's loss. Prayers go out to you all.

[stone_turp]

My sympathies. I am praying for you and your family. I hugged my son extra close today and told him how lucky I was to have him. At least she is in a better place than any of us could even think of. God Bless.

And now these three remain: faith, hope and love. But the greatest of these is love.
1 Corinthians 13:13

[blown93feature]

Tommy, Im truly sorry to hear of this I believe the best way to honer your niece is to remember the way she touched your life and the joy she brought to you. The pain of a loss part may never totaly go away but one thing is for sure and that is you can learn a major thing from her and that is courage and the love for life she had.

I wish you peace,strength and the hand of god to guide you with this and if in the event you find that you need to talk, please don't hesitate to call me I'm here you have my word.

On behalf of my family and the people of gs we send our condolences to you and your family.

Your friend, Joey.

[stolenheron]

I am deeply sorry for your loss, my heart and prayers go out to you and your family.

[mustangfreak123]

i am so sorry to hear of this, at least she is in a better place...

[tweety]

OMG I am so sorry to hear this.

[YaLeenVert]

So sorry to hear about your family's loss.

[sicboy]

i dont even know what to say other than im sory and we will pray for you all.

[1nasty96]

I am so sorry to hear that ,you and your family is in our prayers